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It expands to a
regular weekend visit, then mid-week trips to the doctor.
Then you're making daily calls to be sure medications are
being taken and your elder is able to answer the phone. You
stop by every night on the way home.
They say everyone
wants to stay at home. If we
discount the woman who for twenty
years has detested the retirement
location her husband insisted on, or
the couple who are bone tired of
taking care of the empty
four-bedroom house they raised their
children in, this is the way most
people feel.
But for most of us, even
"successful" aging eventually brings
with it some loss of flexibility,
some aches and pains, perhaps vision
and hearing changes. It gets harder
to do what needs to be done to stay
at home without help. If memory
problems surface it's eventually
downright dangerous to live alone at
home. If one spouse needs a great
deal of care, the other spouse can
become exhausted and depressed, and
often dies before the more
"disabled" spouse.
So, eldercare at home requires a
great deal of thought and
preparation if it is to go well.
Staying at home can be the most
expensive choice of all the
residential alternatives available.
In a group living situation
(assisted living, personal care
home, or nursing home) an aide will
take care of several people. His or
her salary is spread across all of
them. At home, an aide or companion
is giving undivided attention to
just one or two people and there is
no one with whom to share the cost.
This kind of elder care can get
expensive fairly quickly.
Once the amount of care needed at
home expands to more than 5 or 6
hours a day, it begins to be less
expensive financially to look for
alternate living arrangements. Of
course, this is "only money." There
are a lot of other benefits to
staying at home that have nothing to
do with money. But if money is
tight, it can make staying at home
difficult if not
impossible as time goes by.
The decision to stay at home should
be a joint decision. Ideally both
the caregivers and the care
recipient will talk about what is
and what isn't possible to do at
home before urgent needs arise.
Unfortunately, there isn't always
the opportunity before an emergency
crops up and decisions have to be
made in a hurry. Whether you have
the chance to talk it over ahead of
time, or you're working against the
clock, the "thinking &
talking" points below should help to
clarify whether staying at home is
the best decision.
Many families say they are willing
to do "whatever it takes" to keep an
elder at home. Most often they make
this decision while caregiving is
not overwhelmingly difficult. But as
time goes by and demands on their
strength and time increase, they
find themselves stretched to the
breaking point - often before they
see it coming. This is eldercare
creep, and it's almost universal for
those who are trying to take care of
aging loved ones at home.
Few caregivers are in a position to
leave jobs and families to take on
complete responsibility for an
elder's at-home care. Eventually
almost everyone has to turn to some
kind of outside help. If your elder
is capable of understanding this,
and is willing to accept that
staying at home will eventually
involve financial costs, then
staying at home may be an excellent
choice.
If your elder isn't willing to
consider at some point having help
from someone other than family, then
remaining at home will probably be
immensely difficult for the long
term.
The following list gives you some
important things to consider and
talk over. Note that most of the
items on this list suggest that the
older person must not only have the
funds, but must be willing to use
them. He or she must also be willing
to accept the help. This is often
the big barrier that many older
folks aren't willing to cross.
I understand that if my needs
increase I may some day have to pay
for additional help to stay at home.
I understand the approximate cost of
this kind of help, I have the funds
to pay for it, and I am willing to
use my money for the help I will
need to stay in my own home.
I have a close neighborhood support
system (other than a family member)
who I can call on in an emergency.
These people are at home during the
day and are willing to help.
My home is in good repair, and I
have working smoke detectors. If
not, I'm willing and able to get
started on making it so, or I'll
hire someone who can do the work.
I am not confused. I would know what
to do in an emergency. I would be
physically able to do it. If not, I
would be willing and able to pay the
costs of having someone stay with
me, and I would be willing to accept
someone other than a family member.
I have not fallen more than once in
the past 3 months, and I was able to
get up by myself if it happened. If
I have fallen more frequently I
understand that I probably need
someone with me when I walk. This
may not always be a family member,
and I am willing to accept help from
others.
I can remember necessary daily
activities such as taking my
medications and bathing, or I am
willing to accept assistance from
someone who comes in regularly to
help me if I cannot do these things.
My bedroom and bathroom are on the
ground floor.
I would be able to get around
indoors using a walker or a
wheelchair, or I can afford the
necessary renovations. There are no
sunken rooms. Thresholds are not
raised. Doors are wide enough to
pass through.
Indoor clutter is minimal, or I am
willing to clear out/ rearrange my
rooms.
I have an alternate source for
transportation if I should be unable
to drive, and I am willing to use
it.
I can prepare nourishing meals and
clean up afterward, or I am willing
to accept (and pay for if necessary)
help with my meals.
I can do light housework and
laundry, or I am willing to accept
and pay for help if necessary.
I have an extra bedroom where a
companion or aide could spend the
night.
If you and your elder have not both
been able to honestly say "Yes" to
most of these items, then staying at
home for the duration will be
extremely difficult, especially for
the elected caregiver. An elder who
is too "independent" to acknowledge
that he or she may one day need help
will probably refuse the help when
it is really needed. This can put
your care "creep" into caregiver
overload and burnout, as well as
create an unsafe living situation.
If your elder does not have the
funds to pay for necessary
renovations to his home or extended
care through the day, this checklist
will give you a better idea of when
it will be a good idea to start
seriously considering your
alternatives.
Of course, if you're properly
covering all your bases, you'll be
looking seriously at all your
alternatives as soon as you can, and
before you make any decisions.
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